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Title: Analysis of the Spanish national registry for pediatric home enteral nutrition (NEPAD): Implementation rates and observed trends during the past 8 years
Authors: Pedrón-Giner, C.
Navas-López, V. M.
Martínez-Zazo, A. B.
Martínez-Costa, C.
Sánchez-Valverde, F.
Blasco-Alonso, J.
Moreno-Villares, J. M.
Redecillas-Ferreiro, S.
Canals-Badía, M. J.
Rosell-Camps, A.
Gil-Ortega, D.
Gómez-López, L.
García-Romero, R.
Gutierrez-Junquera, C.
Balmaseda-Serrano, E. M.
Bousoño-García, C.
Marugán-Miguelsanz, J. M.
Peña-Quintana, L. 
González-Santana, D.
López-Ruzafa, E.
Chicano-Marín, F. J.
Cabrera-Rodriguez, R.
Murray-Hurtado, M.
Pérez-Moneo, B.
UNESCO Clasification: 32 Ciencias médicas
320110 Pediatría
3206 Ciencias de la nutrición
Keywords: Home enteral nutrition
Enteral tube feeding
Enteral registry, et al
Issue Date: 2013
Journal: European Journal of Clinical Nutrition 
Abstract: Background/Objectives: The home enteral nutrition (HEN) provides nutritional support to children with chronic diseases who are nutritionally compromised and allows them to be discharged more quickly from hospitals. In 2003, a web-based registry (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition -NEPAD-) was created with the objective of gathering information about pediatric HEN practices in Spain. AIM: The aim of this study was to report the implementation of the NEPAD (Nutrición Enteral Pediátrica Ambulatoria y Domiciliaria, Pediatric Ambulatory and Home Enteral Nutrition) registry of pediatric HEN in Spain and to analyze data evolution trends from 2003 to 2010. Subjects/Methods: The data from the Spanish NEPAD registry were analyzed according to the following variables: demographic data, diagnosis, indication for HEN, nutritional support regime and administration route. Results: Over the study period, 952 patients (1048 episodes) from 20 Spanish hospitals were included in the NEPAD registry. The most frequent indication for HEN was decreased oral intake (64%), and neurological disease was the most prevalent illness. HEN was delivered via a nasogastric tube in 573 episodes (54.7%), by gastrostomy in 375 episodes (35.8%), oral feeding in 77 episodes (7.3%) and by jejunal access in 23 episodes (2.2%). Significant differences in the mode of administration were observed based on the pathology of the child (χ2, P<0.0001). The cyclic feeding was the most widely used technique for the administration of HEN. Most of the patients used a pump and a polymeric formula. Transition to oral feeding was the primary reason for discontinuation of this type of support. Conclusions: Since the NEPAD registry was established in Spain, the number of documented patients has increased more than 25-fold. Many children with chronic illness benefit from HEN, mainly those suffering from neurological diseases.
ISSN: 0954-3007
DOI: 10.1038/ejcn.2013.8
Source: European Journal of Clinical Nutrition[ISSN 0954-3007],v. 67, p. 318-323 (Febrero 2013)
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