Please use this identifier to cite or link to this item: http://hdl.handle.net/10553/47596
Title: Design, construction, and implementation of an online platform for patients with type 1 diabetes: EncoDiab
Authors: Alvarado-Martel, Dácil 
Cañas, Francesca
Velasco, Rebeca
Alcubierre, Nuria
López-Ríos, Laura
Rius, Ferran
Nóvoa, Francisco Javier
Carrillo, Armando
Hernández, Marta
Wägner, Ana María 
Mauricio, Dídac
UNESCO Clasification: 32 Ciencias médicas
Keywords: Self-Management
Support
Care
Adolescents
Outcomes, et al
Issue Date: 2015
Journal: Patient Preference and Adherence 
Abstract: Purpose: The purpose of this study was to develop, build, and implement a virtual platform equipped with practical tools, relevant contents, and communication rooms, with the aim of facilitating patients' self-management of type 1 diabetes mellitus (T1DM).Materials and methods: The design of the platform was based on the suggestions of T1DM patients who were being managed at two reference hospitals. Patients' needs and preferences were identified in group discussion sessions. Before having access to the platform, patients underwent a baseline assessment, which included physical examination and the administration of validated questionnaires for evaluation of clinical background, quality of life, treatment satisfaction, and well-being.Results: A total of 33 patients were included in the study; 54.5% of them were men, their median age was 34 (18-50) years, the median duration of diabetes was 15 (1-38) years, and the median A1C was 7.4% (6%-12.6%). Based on their suggestions and requests, the online platform EncoDiab was built and organized into four domains: a personal domain, two domains shared by the patients and the staff of each of the two participating hospitals, and one domain that was accessible to all participants. The platform included practical tools (a body mass index calculator, a carbohydrate counting tool, and an insulin-dose calculator), a library with relevant information (documents on prevention and treatment of acute complications, nutrition, exercise, etc), and a chat room.Conclusion: Although the study is still ongoing, our current results demonstrate the feasibility of building and implementing an online platform for helping T1DM patients in the self-management of their disease in the public health setting.
URI: http://hdl.handle.net/10553/47596
ISSN: 1177-889X
DOI: 10.2147/PPA.S77730
Source: Patient Preference And Adherence [ISSN 1177-889X], v. 9, p. 767-775, (2015)
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