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Title: Quality of life and type 1 diabetes: a study assessing patients' perceptions and self-management needs
Authors: Alvarado-Martel, Dácil 
Velasco, Rebeca
Sánchez-Hernández, Rosa M. 
Carrillo, Armando
Novoa, Francisco J. 
Wägner, Ana María 
UNESCO Clasification: 32 Ciencias médicas
Keywords: Type 1 Diabetes
Quality of Life
Patients' Perceptions
Issue Date: 2015
Journal: Patient Preference and Adherence 
Abstract: Purpose: The main objective of this study was to assess quality of life (QoL) and treatment satisfaction in a group of patients with type 1 diabetes (T1D) and explore their needs regarding and their perception of QoL living with diabetes.Materials and methods: Patients with type 1 diabetes attending the outpatient endocrinology clinics of a reference hospital were invited to participate in a cross-sectional study. Clinical and sociodemographic data were obtained (interview and clinical records), and diabetes-related QoL was assessed using a standardized questionnaire. In 67 participants, satisfaction with treatment was also assessed, and an open interview was performed, assessing the impact of diabetes, long-term worries, flexibility, restrictions, and self-perception of QoL. Descriptive statistical analysis, bivariate analysis, and multivariate analysis were performed in order to find factors associated with QoL. Interviews were analyzed and summarized questionwise.Results: Mean patient age was 31.4 +/- 11.6 years, diabetes duration 14.2 +/- 9.3 years, and glycated hemoglobin (HbA(1c)) 8.5%+/- 1.9% (69 +/- 20.8 mmol/mol International Federation of Clinical Chemistry [IFCC]). The questionnaires showed good average QoL scores (94.6+22.9) and treatment satisfaction scores (25.7 +/- 6.7). QoL worsened with increasing HbA(1c), female sex, severity of complications, and lower education (r(2)=0.283, P<0.005). In the open interview, 68.5% of the patients reported that diabetes had changed their lives, 83.5% identified complications as their most important long-term concern, and 59.7% said that they needed more training to manage the disease.Conclusion: Poor glycemic control, lower education, complications, and female sex are associated with worse QoL. Semi-structured interviews identified aspects not included in the standardized questionnaires.
ISSN: 1177-889X
DOI: 10.2147/PPA.S87310
Source: Patient Preference and Adherence [EISSN 1177-889X], v. 9, p. 1315-1323, (Septiembre 2015)
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