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Title: Spanish family quality of life scales: under and over 18 years old
Authors: Giné, Climent
Vilaseca, Rosa
Gràcia, Marta
Mora, Joaquín
Orcasitas, José Ramón
Simón, Cecilia
Torrecillas Martín, Ana María 
Beltran, Francesc S.
Dalmau, Mariona
Pro, Maria Teresa
Balcells-Balcells, Anna
Mas, Joana Maria
Adam-Alcocer, Ana Luisa
Simó-Pinatella, David
UNESCO Clasification: 630903 Familia, parentesco
Keywords: Familias
Calidad de vida
Issue Date: 2013
Publisher: 1366-8250
Journal: Journal of Intellectual and Developmental Disability 
Abstract: Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families' lives.
ISSN: 1366-8250
DOI: 10.3109/13668250.2013.774324
Source: Journal of Intellectual and Developmental Disability[ISSN 1366-8250],v. 38, p. 141-148
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