Please use this identifier to cite or link to this item: https://accedacris.ulpgc.es/handle/10553/143902
Title: Exploring the Patient Experience in Behçet’s Syndrome: A Two-Phase Qualitative Study Using a Biographical-Narrative Approach
Authors: Rodríguez-Sánchez, Ariadna
Rodríguez Suárez, Claudio Alberto 
Díaz González, Candelaria Merced 
González De La Torre, Héctor 
UNESCO Clasification: 32 Ciencias médicas
3201 Ciencias clínicas
3212 Salud pública
Keywords: Autoimmune diseases
Behçet syndrome
Biographies as topic
Qualitative research
Review literature as topic
Issue Date: 2025
Journal: Cureus 
Abstract: Background Behçet’s syndrome (BS) is a systemic autoimmune disease, classified among the vasculitides, with an unknown etiology. It significantly impacts the quality of life of those affected. Healthcare professionals must understand the characteristics of this syndrome to provide comprehensive care. Objectives The main objective of this study is to synthesize qualitative evidence on BS, and explore the life experiences of a person living with this condition, through a biographical-narrative account to inform clinical and psychosocial care strategies. Methods A two-phase study was conducted. Phase 1 involved a qualitative systematic review, including studies in English and Spanish, without restrictions on publication year. A search was conducted in the Medline, Web of Science, and Scopus databases. Themes and sub-themes were extracted to develop the interview guide. In Phase 2, a semi-structured interview was conducted with a woman diagnosed with BS, employing a biographical-narrative design. The interview was recorded, transcribed, and coded, and themes and sub-themes were identified using ATLAS.ti software (version 25.0.1; ATLAS.ti Scientific Software Development GmbH, Berlin, Germany). Results The themes (n = 3) and sub-themes (n = 7) identified in the interview were: coping and adaptation strategies (self-care and seeking support), interactions with the healthcare system (medical care and health education), and the experience of living with the disease (emotional well-being, physical discomfort, and vulnerability). Conclusions Qualitative literature on BS is limited and focused on adults, revealing gaps in care and psychosocial support. The testimonial collected highlights the everyday barriers faced by individuals with BS, and identifies key areas for clinical and psychosocial intervention. Further multidisciplinary qualitative research is recommended to improve diagnosis, treatment, and comprehensive support.
URI: https://accedacris.ulpgc.es/handle/10553/143902
ISSN: 2168-8184
DOI: 10.7759/cureus.88891
Source: Cureus, [ISSN 2168-8184], v. 17 (7), e88891, (Julio 2025)
Appears in Collections:Artículos
Adobe PDF (779,66 kB)
Show full item record

Google ScholarTM

Check

Altmetric


Share



Export metadata



Items in accedaCRIS are protected by copyright, with all rights reserved, unless otherwise indicated.