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http://hdl.handle.net/10553/133213
Title: | Cross-cultural adaptation and validation of Work Productivity and Activity Impairment questionnaires for caregivers of patients with pediatric inflammatory bowel disease in Spain. A multicenter study | Authors: | Rodríguez Belvis, Marta Velasco Palomino, Laura Pujol Muncunill, Gemma Martin Masot, Rafael Barrio Torres, Josefa Navas López, Víctor M. Martín de Carpi, Javier Peña Quintana, Luis* |
UNESCO Clasification: | 32 Ciencias médicas 320503 Gastroenterología |
Keywords: | Inflammatory bowel conditions Surveys and questionnaires WPAI-UC-Caregiver and WPAI CD-Caregiver Validation study |
Issue Date: | 2024 | Journal: | Archivos Argentinos de Pediatria | Abstract: | Introduction. The WPAI-UC/CD-Caregiver questionnaires assess the impact of ulcerative colitis (UC) or Crohn’s disease (CD) on parents’/caregivers’ work life and daily activities. Our objective was to adapt and validate these questionnaires in the Spanish population. Methods. A translation and back-translation were done. The document was assessed by an expert committee and a pilot group of families of patients with pediatric inflammatory bowel disease (p-IBD). For validation, the parents/caregivers of patients with p-IBD (10–18 years old) were recruited. The expert committee and the pilot group conducted a subjective assessment of the format and time necessary to complete the questionnaires. Cronbach’s alpha coefficient was estimated and a factor analysis with varimax rotation was done. Kaiser Meyer-Olkin (KMO) coefficients and Bartlett’s sphericity test were estimated to test the adequacy of the factor analysis. Results. A total of 370 patients (median age: 14.1 years) and 263 parents/caregivers of patients with UC or unclassified IBD and 261 parents/caregivers of patients with CD were included. The KMO coefficients (0.6947 and 0.7179) and Bartlett’s sphericity test (p < 0.001) confirmed the adequacy of the factor analysis. The 6 items targeted the same domain. The factor model accounted for 99.99% and 94.68% of variance, and Cronbach’s alpha coefficients (0.6581 and 0.6968) showed an adequate consistency. The format and the median time of 2 minutes to complete the questionnaires were considered optimal. Conclusions. The versions of the WPAI-Caregiver questionnaires validated in the Spanish population may be used in families whose children have IBD. | URI: | http://hdl.handle.net/10553/133213 | ISSN: | 0325-0075 | DOI: | 10.5546/aap.2024-10329.eng | Source: | Archivos Argentinos de Pediatria [ISSN 0325-0075), (julio 2024) |
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