Please use this identifier to cite or link to this item: http://hdl.handle.net/10553/76245
DC FieldValueLanguage
dc.contributor.authorPerdue, Letitia H.en_US
dc.contributor.authorAlbret, Lotteen_US
dc.contributor.authorAldrich, Alanen_US
dc.contributor.authorLoth, Amandaen_US
dc.contributor.authorSides, Elizabeth G.en_US
dc.contributor.authorDove, Angelaen_US
dc.contributor.authorWägner, Anaen_US
dc.contributor.authorWaterman, Rebeccaen_US
dc.contributor.authorPierce, June J.en_US
dc.contributor.authorAkolkar, Beenaen_US
dc.contributor.authorSteffes, Michael W.en_US
dc.contributor.authorHilner, Joan E.en_US
dc.date.accessioned2020-12-02T14:44:07Z-
dc.date.available2020-12-02T14:44:07Z-
dc.date.issued2010en_US
dc.identifier.issn1740-7745en_US
dc.identifier.otherWoS-
dc.identifier.urihttp://hdl.handle.net/10553/76245-
dc.description.abstractBackground When collecting phenotypic data in clinics across the globe, the Type 1 Diabetes Genetics Consortium (T1DGC) used several techniques that ensured consistency, completeness, and accuracy of the data.Purpose The aim of this article is to describe the procedures used for collection, entry, processing, and management of the phenotypic data in this international study.Methods The T1DGC ensured the collection of high quality data using the following procedures throughout the entire study period. The T1DGC used centralized and localized training, required a pilot study, certified all data entry personnel, created standardized data collection forms, reviewed a sample of form sets quarterly throughout the duration of the study, and used a data entry system that provided immediate feedback to those entering the data.Results Due to the intensive procedures in developing the forms, the study was able to uphold consistency among all clinics and minimal changes were required after implementation of the forms. The train-the-trainer model was efficient and only a small number of clinics had to repeat a pilot study. The study was able to maintain a low percentage of missing data (<0.001%) and low duplicate data entry error rate (0.10%).Conclusions It is critical to provide immediate follow-up in order to reinforce training and ensure the quality of the data collected and entered.en_US
dc.languageengen_US
dc.relation.ispartofClinical Trialsen_US
dc.sourceClinical Trials [ISSN 1740-7745], v. 7 (sup. 1), p. S46-S55, (Agosto 2010)en_US
dc.subject32 Ciencias médicasen_US
dc.subject3201 Ciencias clínicasen_US
dc.subject.otherInternational Geneticsen_US
dc.subject.otherTrialen_US
dc.subject.otherDiabetesen_US
dc.titleQuality control of phenotypic forms data in the Type 1 Diabetes Genetics Consortiumen_US
dc.typeinfo:eu-repo/semantics/Articleen_US
dc.typeArticleen_US
dc.identifier.doi10.1177/1740774510373495en_US
dc.identifier.scopus79952279386-
dc.identifier.isi000280707300003-
dc.contributor.authorscopusid26021488000-
dc.contributor.authorscopusid37008195900-
dc.contributor.authorscopusid37008336000-
dc.contributor.authorscopusid37008552800-
dc.contributor.authorscopusid6603458613-
dc.contributor.authorscopusid37008182700-
dc.contributor.authorscopusid7401456520-
dc.contributor.authorscopusid37008671900-
dc.contributor.authorscopusid26221932800-
dc.contributor.authorscopusid21742283000-
dc.contributor.authorscopusid35360768100-
dc.contributor.authorscopusid57205032665-
dc.identifier.eissn1740-7753-
dc.description.lastpageS55en_US
dc.description.firstpageS46en_US
dc.relation.volume7en_US
dc.investigacionCiencias de la Saluden_US
dc.type2Artículoen_US
dc.contributor.daisngid1517641-
dc.contributor.daisngid10492324-
dc.contributor.daisngid6169721-
dc.contributor.daisngid30844636-
dc.contributor.daisngid3403967-
dc.contributor.daisngid7584405-
dc.contributor.daisngid450201-
dc.contributor.daisngid23922300-
dc.contributor.daisngid4727702-
dc.contributor.daisngid521186-
dc.contributor.daisngid566527-
dc.contributor.daisngid753461-
dc.description.numberofpages10en_US
dc.utils.revisionen_US
dc.contributor.wosstandardWOS:Perdue, LH-
dc.contributor.wosstandardWOS:Albret, L-
dc.contributor.wosstandardWOS:Aldrich, A-
dc.contributor.wosstandardWOS:Loth, A-
dc.contributor.wosstandardWOS:Sides, EG-
dc.contributor.wosstandardWOS:Dove, A-
dc.contributor.wosstandardWOS:Wagner, AM-
dc.contributor.wosstandardWOS:Waterman, R-
dc.contributor.wosstandardWOS:Pierce, JJ-
dc.contributor.wosstandardWOS:Akolkar, B-
dc.contributor.wosstandardWOS:Steffes, MW-
dc.contributor.wosstandardWOS:Hilner, JE-
dc.date.coverdateAgosto 2010en_US
dc.identifier.supplement1-
dc.identifier.ulpgcen_US
dc.contributor.buulpgcBU-MEDen_US
dc.description.jcr2,356
dc.description.jcrqQ2
dc.description.scieSCIE
item.fulltextSin texto completo-
item.grantfulltextnone-
crisitem.author.deptGIR IUIBS: Diabetes y endocrinología aplicada-
crisitem.author.deptIU de Investigaciones Biomédicas y Sanitarias-
crisitem.author.deptDepartamento de Ciencias Médicas y Quirúrgicas-
crisitem.author.orcid0000-0002-7663-9308-
crisitem.author.parentorgIU de Investigaciones Biomédicas y Sanitarias-
crisitem.author.fullNameWägner, Anna Maria Claudia-
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