Significant insights provided by patients with indwelling catheter

Abstract

Introduction & Objectives: Indwelling catheterisation has been routine for decades, yet it can significantly impact patients' Quality of Life(QoL). Few QoL questionnaires address catheterised patients' well-being from the perspective of the devices and accessories themselves. Invalidating a new questionnaire based on patient insights on product usability and lifestyle changes, we assessed its clarity, relevance, andadaptability for reliable patient evaluations. This study highlights patient insights gathered during the face validation process. Materials & Methods: The questionnaire consists of 30 items divided into four sections: general data, impact on lifestyle, catheterfunctionality, and self-perception. Validation was conducted by the Institute of Patient Experience through a workshop with healthcareprofessionals and patients from the urology departments of the 12 de Octubre and La Paz hospitals in Madrid. Inclusion criteria focused onpatients requiring indwelling catheters, excluding hospitalized patients, those with cognitive impairments, and minors. The healthcareprofessional group included experienced urology nurses and urologists. Results: Eight patients and five healthcare professionals participated in the workshop, providing valuable feedback on the impact ofcatheterisation on QoL. Patients emphasized various aspects affected by catheterisation, including adjustments to clothing for comfort anddiscretion, limitations on daily and social activities, household tasks, and the need for adequate water intake. Patients noted restrictions inlifting, exercising, and socializing, with travel experiences differing based on lifestyle and catheter type. Access to clean restrooms andhealthcare was seen as essential, while hygiene and personal care routines became more complex and time-consuming. Family support washighlighted as critical, especially in the initial months following catheter placement. The early period after catheter placement is critical, with ahigh likelihood of complications requiring medical attention. Patients also reported difficulty following healthcare instructions and expressed aneed for more information about alternative accessories. Urinary leaks were a constant concern, both day and night, along with pain, traction,sensations of cystitis, and discomfort from sudden movements. Conclusions: Patient insights are invaluable during QoL questionnaire validation. In our case, feedback underscores the critical importanceof the initial days post-catheterisation and highlights the considerable impact on daily life. Providing effective support and resources isessential. Using specific questionnaires can help when choosing the best device for each patient, tailored to their unique needs, abilities, andlifestyle. Individualized assessment may further help reduce the long-term impacts of catheterisation, promoting an active lifestyle andadequate hydration.